There are several websites that offer tools and tips to help you organize your child’s information, utilizing either a notebook or a computer.
Here are some parent favorites:
Packaging Wisdom: A Family Centered Care Coordination Notebook
Packaging Wisdom, A Family Centered Care Coordination Notebook (PDF), is a downloadable guideline and template from Wyoming Family 2 Family Health Information Center. It can help you start organizing information regarding your child’s health condition and medical history. You can find it here.
The Center for Children with Special Needs at Seattle Children's Hospital Care Notebook
The Seattle Children's Hospital has created downloadable notebook for helping parents with children with special needs get their child's information organized. You can find it here.
The National Resource Center For Patient/Family-Centered Medical Home
This page includes tools, resources, and links to information that will assist families in successfully partnering with their child’s medical home, including "Building Your Care Notebook" with downloadable pages to start your notebook. You can find it here.
Parent Companion: First Five Years
This site provides a guide for parents and caregivers of children with diagnosed or suspected disabilities from birth through 5 years of age. Their page " How to Organize Your Child's Medical Information" outlines how to organize your child’s medical information and why it’s so important. You can find it here.
Military Families
The Special Care Organizational Record for Children with Special Health Care Needs is specifically designed as an organizing tool for military families with children with special health care needs. It is intended to help track and organize your child’s information to make it easier for someone to care for your child in your absence. You can download it for free here.
